Hey.
I know I haven't posted in awhile, I have been trying to get back to 'normal'.
Last thing I posted was that I had to have a PET scan. Well I had that, it wasn't fun. I had to sit with my arms above my head for about 40 mins and the pillow fell down after about 15 mins. We waited a week then went to the doctor. The PET scan showed some activity. A little crescent shape in the top of the biggest lymph node showed activity. They are unsure if this is simply showing the lymph node healing or if it is still cancer.
So my Doctor spoke to Dr Einhorn (http://www.cancer.iu.edu/patients/find_doctor/physician_bio.php?id=3017), he is apperently the go-to guy when it comes to testicular cancer. He asked for everything to be sent up to him for him analyse. He thinks that the next step will be an operation but before we rush into a serious operation we are hoping to do another PET scan. Apparently the insurance company doesn't like paying for more the one P.E.T. scan over a set period time, but we could fight the insurance for this next scan. Or we pay for it out of pocket. Either way we still have to wait a month for that.
Ah, I forgot to mention that this surgery to remove the lymph nodes is super risky and it can damage nerve ends and guess which ones? Yep the ones that control my penis.. Wooo. This operation is tricky that we would have to travel to Indianapolis, Indiana to get it done. Its still a waiting game. I was so mad after this doctors visit. I was incredibly mad after the last doctors visit. I just didn't expect or was ready for the "I don't know" results.
We went back again today, and once again nothing. I guess we will be going back again next week.
